Canada Doesn’t Fund Fibro Research – But Won’t Take Fibromite’s Donated Blood?

OK, what’s up with this, Canada?

A lot of that stems from the fact that fibromyalgia, chronic fatigue syndrome and Multiple Chemical Sensitivities aren’t recognized as chronic illnesses, Bested notes, and consequently receive no funding for research. Nor do they figure well in resident training.“At the government level, they’re invisible.”

Yet last month, Canada became the first country in the world to ban blood donations from people diagnosed with chronic fatigue syndrome in the wake of groundbreaking study published in the prestigious journal Science, advocates point out. U.S. researchers discovered a human retrovirus, XMRV, that could be linked to CFS. The move was a precautionary measure as it’s feared the virus, which closely resembles the AIDS virus, could be transmitted through blood transfusions. Australia followed suite a few weeks later.

“We can’t get funding because we’re not considered a chronic illness, and yet they won’t take our blood,” Saraiva says.
“We’re dealing with powerful, wealthy insurance companies who have a bottom line,” Samosas says. “A lot of people have had horrendous cases in court with CPP and fight for years.

Clinical depression often blamed before diagnosis of fibromyalgia, Healthzone (Canada)

Seriously, what gives? How about we drag you kicking and screaming into the 21st century? With all the talk about how the Canadian system is a model national health care policy, can we not live in the Middle Ages here?

I seriously doubt the U.S. is much better in its level of funding of fibromyalgia and other chronic pain research but here’s the thing: chronic pain costs money. A lot of it. Add up the doctor’s bills, the prescription costs, the lost time and productivity for businesses whose employees suffer from it … you’re looking at a big number.

Fibro and chronic pain conditions are not a “lifestyle choice.They’re debilitating diseases, and it’s time to stop treating those of us with these conditions as if we’re lying liars who lie and just want to sit on our asses all day eating bon-bons. I don’t know a single fibro sufferer who wouldn’t give her or his right arm to be able to work and live like they used to again.

So shut up, already, and be nicer to us. It could be you in this position one day.

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5 thoughts on “Canada Doesn’t Fund Fibro Research – But Won’t Take Fibromite’s Donated Blood?

  1. sheilarenee

    Girl!!! I would love to high-five you!! Thanks for telling it like it is. ~Sheila, your FB friend

    Reply
  2. Susan MacDonald

    Wouldn't it be amazing if all of the doctors, politicians, etc. had Fibro (or any other chronic pain illness) for just a wee while? I wonder how fast they would come over to our side of the fence?

    Kudos for saying it like it is! 😉

    Reply
    1. AMW

      Oh my gosh Susan! That is one of my biggest fantasies. For all the jobs that have fired me for being on FMLA, and the people at the disability office! If they could experience chronic pain, fibromyalgia for just a month. I don't even wish them to have it forever like me. Just a month. Maybe this world would be better for us!!

      Reply

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